Temple/Clinic

 

Clinic was yesterday, it was an extra long day but worth it. We decided to hit the road by 7:30 so Todd could go to the temple its been a while and we both felt it was a good thing, he was anxious leaving me with the 2 kids out there while he was inside and so far from home but things went well.  The kids and I survived as I had assured him we even found out there's a waiting room inside we played in for a little bit.  I could tell the kids were feeling the Spirit when we first got in there and Gracie was telling Tyson to be quiet, not so loud or rough.  Of course they are still kids so after the initial feeling wore off they got wild and we spent the last part running out in the field across the parking lot. 
Gracie did great at clinic and her counts were good!  Yay!!!  Have i mentioned how grateful and relieved we feel that her counts have been so good and finally recovered!  Such a blessing!!

Stats

Height: almost 3' 4"  (101.5 cm)

Weight: almost 40 lbs (above but with clothes on)

WBC:3.3

ANC:1880

HGB:12.7
Platelets:260,00

 

She of course had to have a prize for Tyson again and chose him a little bear with a rose for his valentine:) She is just so sweet!  And chose some little figures of princesses/princes/wizards/dragons etc which she loves.  Once we realized there were several cases of the real flu hospitalized there we were definately more anxious and tried to stay in our room after that.  So far so good. Oh yeah and a little boy wandering around the hall that told the nurse he had a sore throat/headache so he wasn't at school she told him he should go back to his siblings room then.  But we just stayed in our room and wiped hands like crazy and it seems to have worked because it's now been 5 days and we're all still healthy and grateful.  Since her ANC was about 1500 again Dr P upped her dose of chemo I guess her BSA (body surface area) has increased enough to up her to 7.5 pills of 6MP a week from 6.5 and her methotrexate is now at 6 pills a week.  She is a total rockstar at swallowing now and swallows every pill not always totally willingly but I don't blame her a bit. Especially on methotrexate days when it's like here open up i have 6 pills for you...she usually does 2 at a time and only because my gloved hands can't pick up more at a time and at 3 they don't hold them there long without swallowing or spitting them out.  I actually think she could do all 6.  

She got her pentamidine and Tyson of course hasn't been to clinic for a long time other than the quick blood draws in town for counts and was very interested in her iv pole and everything he shouldn't be haha (and TIRED).  But in all honesty he handled the day like a champ for his age.  He's a great little guy at the end Dad took him out to the car and he fell asleep immediately while Gracie and I finished up.  I should have snagged a pic of tyson in the crib in her room haha it kept him contained for a few minutes:)  Next month is another spinal tap/steroid/vincristine(IV chemo) month...after that we'll be down to 1 more! 

 

Friday Gracie got to take another link off the chain!  21 weeks left!!!  And flipped a page in the countdown calendar!!  Farewell January!  And welcome february with so far enough warmth to bundle up and hit the park every day!!  We have loved it especially Gracie...swimming, parks, princesses, dancing and dresses are a few of her VERY favorites for now!  And she is loving puzzles, playing with her little people buses, houses and any figure/doll/accessory/stuffed animal she can get a hold of and make a pile with.  SHe transfers them from her big doll house to the bus to the small doll house into a tote and more:)  Good thing i'm not a crazy perfectionist with toys and order because I think it would destroy her fun and that's pretty important to me so the piles usually stay and transform day after day.  A constant reminder that I'm blessed enough to spend another day with her!  Thank you Father for each blessed day!!  Park play date today and she's been making lots of valentines!  She's turning into a very kind/sharing (often, she is a kid still ;) )and inclusive person.  When I told her Jon was going to play with us at the park tomorrow last night she immediately told her daddy and Landon and Jaylee and named all the friends she has been playing with.  She's constantly such a good example for us as her parents. Again, I feel truly blessed!  Oh and sweet little Gracie's favorite song to sing is the ABC song and the 5 little monkeys, she takes after her quiet/shy/reserved parents as kids and when we ask her to she gets really shy/embarassed and says she can't.  But she sings it all the time when she doesn't know i'm listening!  Keep on fighting sis,  you're going to make it!!  And we're behind you every step of the way and so many others most especially our loving Father in Heaven!