Methotrexate again...

So it goes...my predictions seem to almost always be wrong.  Haha good thing I didn't go into oncology my patients wouldn't be pleased with my totally wrong predictions.  Then again maybe that's why they don't predict too much for us...This week I thought she would bomb counts!  I was wrong...she somehow went up from 900 before her last chemo to 2400 in her ANC.  When I asked the Dr why he said there is no logical explanatino and tried to tell me why then stopped and said if I told you something I'd just be making it up!  Haha gotta love a Dr with enough humility to be honest...I appreciated it anyways:)  So Friday I took Gracie to clinic and Todd was gracious enough to stay home with Tyson who ended up sleeping for like 3 hours of it...they somehow know when he's responsible for them it seems and sleep so much better.  Or I'm just so tired that I see it that way...probably the latter. 
Anyway at clinic she got her zofran and we waited for her labs from downstairs to come back...and when they should have been back the nurse called and they said it was lost somewhere in the tube system.  So she redrew the blood and we started again.  A while later it came back good ( her liver enzymes-blood chemistries- have to be at a certain level for methotrexate as well as her blood counts).  Thankfully she fell asleep for about an hour or so while we waited b/c her appt was at 12:30 pm despite my efforts to get an earlier appt.  She woke up mad while they were giving her chemo, but we managed to hurry and get out of there and head home just before the rotten friday night traffic I think we left about 3:30.
Her sleep schedule is way off even though we had somewhat regulated her for a few nights she slept last night from midnight til 11 am.  And she just woke up from a nap...Yikes it's 8:45 pm.  You'd think at 7:00 it would be for the night.  Nothing like cancer to ruin a child's sleep schedule.  She's sleeping more from the methotrexate she usually only sleeps a max of 9 hours a night typically 8.  Tyson has really been a starving little guy i pumped one night b/c I was exhausted and Todd thought if he slept right next to him he would sleep longer.  Nope...he still wanted to eat about every 2 hours.  He's darn cute though and we love him.  But I wouldn't turn down a little more sleep at night.
Gracie woke up yesterday morning around 10 and didn't want to eat for about an hour and then when she did after a few bites she got a scared look started crying a little and grabbed at her stomach I tried to hurry and get her out of her seat and to the sink...but alas it was unsuccessful and we both ended up with smelly oatmeal on us.  Just makes me sad that she has to keep getting stuff that makes her feel that way.  Wish she could tell us so we knew how long to give her her medicine cause she acts ok...then suddenly throws up.  Oh well only 3 more doses of the IV methotrexate.  She is really acting older and LOOKING older.  Several of the nurses and her Dr mentioned it at clinic this week.  Shes' getting taller and thinning out.  She's lost some weight too probably a combo of her not eating much for a few days after chemo  and some of the steroid weight coming off.

Clinic Stats:

Weight: 14.8 kg (down from 15.1)

ANC: 2400

Hemoglobin: 11.7

Platelets: over 400,000

She's talking more and more and seems to understand so much.  Her hair is also beginning to come back in.  Just peach fuzz still but looking darker and there are more little hairs growing in.